Before the inquisition, however, I was required to watch a video of a sweet young couple going through some of the steps to ensure the wife's decision to share her beloved body part with her husband - one of those staged situations where the "patients" gaze at one another through googly eyes and speak in nauseatingly syrupy tones while they somehow have the presence of mind to then turn and articulate the appropriate questions to the medical professionals in perfect sequential order - where the "doctors", in turn, sit in accommodating response to their inquiries, not with one hand overtly on the doorknob indicating I have thirteen more patients waiting to see me in rooms down the hall, so chop chop! but with full attention directed toward the parties, making them feel as though they are the only people on the face of the planet. Barf!! I always wonder if I'm supposed to be taking notes during those things rather than looking down my nose at them... Anyway, after a bathroom break the parade began, and I met with a nurse practitioner, a pharmacist, a nephrologist, a dietician, my donor advocate and several other individuals who each probed, analyzed and educated in their relevant areas of expertise.
The final meeting was a detailed psycho/social evaluation with a two social workers who posed the questions dictated by established protocol for those considering this surgery - in effect, was I really sure about what I was doing and were all my marbles intact?
- Do you understand that you are a perfectly healthy person agreeing to a totally unnecessary surgical procedure that will pose serious risks, however low that percentage of said risks may be? Here, let me list those possible complications to try to scare you to death, I mean educate you.
Yes, I fully understand. - Are you sure? Absolutely
- Have you been pressured in any way to give up your kidney? Not at all.
- Has anyone offered money or other forms of payment in exchange for your organ? (burst of laughter) Oh yeah! My brother's millions outnumber mine! If only! No, I've told him he owes me a meal on occasion in exchange for the fasting I've had to do prior to certain unpleasant tests.
- You understand that you can change your mind up until the time they wheel you into surgery? Be sure to speak up if you have any doubts.
I'm not going to change my mind, but yes, thank you. I get it.
I was asked a few more questions pertaining to my personal life, and at that point the subject of Erin's diagnosis, subsequent life with cancer and ultimate death took center stage in the conversation. Through tears I'd tried SO hard to choke back for fear they'd consider them a sign of instability and cause for my elimination as a donor, I'd assured them of my confidence to have this surgery, and the integral part Erin played in my decision to step forward at the end of January to begin testing.
One social worker seemed really tuned in while I spoke. I finished, and while maintaining the required degree of professionalism so as not to expose personal details, this woman informed me that she, too, had faced formidable challenges in her life. She told me she'd often been called brave and strong and tough and admirable and... but, when all was said and done, had found her word of preference in description of the way she wanted others to view her was resilient.
Resilient. Since that day, I've thought of that conversation often.
resilience
the return of form or position after being bent, compressed or stretched
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the ability to spring back, rebound
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a recovery from adversity
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the positive ability of a system to adapt itself
to the consequences of a catastrophic failure caused by
power outage, a fire, a bomb or similar event
death of child
death of child
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the ability to provide and maintain an acceptable level of service
in the face of faults and challenges to normal operation
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the positive capacity of people to cope with stress and catastrophe,
including the ability to bounce back to homeostasis after a disruption
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the ability to weather tribulation without cracking
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irrepressibility
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the propensity to land on one's feet
resilience
When I was seeing a therapist for awhile after Josh died, I told her that I have enough resilience for ten people and that all he needed was enough for one -- what I cannot understand is how could I not have given him that? As I have come to understand that depression is like any other illness -- sometimes treatable and sometimes deadly -- I have come to accept that I could not. But I hate that reality.
ReplyDeleteResilience - a blessing and a curse.
"the propensity to land on one's feet" - just like your blog title. You are resilient, and I thank God for that quality.
ReplyDeleteResilience is one of my favorite words, I think about it alot. Have you read Elizabeth Edward's book Resilience? It is one of the first books I read after Caroline died, and I loved it. It's a book of wisdom and grace.
ReplyDeleteI've been told I'm resilient. I'm trying. I'm really, really trying.
I hope you and your brother are both doing well!
The English lauguage is so limited, it fails to describe all your journey encompasses. Resilient? That and so much more to so many of us!
ReplyDeletexxoo
Oh Robin... how I often hate reality as well. I don't know why we can't give our children our strongest attributes. It seems we should have the right to pick and choose, to pass on those that prepare, fortify, protect and allow for endurance.
ReplyDeleteI'm so very grateful for my resilient qualities - OUR (yours, Karen's, Carol's, Robin G's, Carin's mine and the many others) ability to somehow pick ourselves up after the unthinkable happened to each of us, and to move forward each day. Like Carol said... trying, really really trying.
I feel the personal frustration of being blessed with a state of health so perfect I could donate a kidney, and yet Erin was handed a diagnosis that was deadly. I wanted it to be me... always. Yes, I often hate reality.
And Margaret, the English language also falls short on words to adequately describe a thoughtful and devoted friend.
xo
Margaret is so wise! She states just what I am thinking!
ReplyDeleteOff the topic, something occurred the other day which struck me in 2 ways: first because it happened and secondly, because I realized it must happen to you. I was driving down Brainard when I saw, from behind, a girl with a pony tail walking her dog WHO LOOKED JUST LIKE ERIN and I casually thought to myself, 'oh, there's Erin Potts.' It took me a microsecond to remember it can't be Erin. In that split second, my heart ached in empathy with the thought of you, Mary, seeing various resemblances of Erin. Resilience only begins to explain the life you live.... Love, I
Irene, your words about seeing "Erin" reminds me of a post I wrote back in April of 2010 - "Removing the Barrier of Grief". I don't know if you followed my blog back then, but in it I refer to a passage from C S Lewis' book, "A Grief Observed" and I relate to his thoughts about "meeting his wife everywhere". Yes, Erin appears in all my senses, and as agonizingly painful as it is that she is gone, I'm grateful to still have her near me through the years of joyful memories - yep, even in the stink of volleyball kneepads...
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